This past Saturday Lauri (of Lalee Photography) and I had the pleasure of photographing a very special little boy, Nicky. Nicky’s parents got in touch with me through the American Child Photographer’s Charity Guild, a volunteer based organization of photographers devoted to helping children in need and their families. I can’t really put into words how wonderful and inspirational Nicky and his parents are. They are just such warm, caring, genuine people.

Nicky was diagnosed with MLD when he was two years old. MLD is a rare genetic disorder that currently doesn’t have a cure. Even faced with this diagnosis, Nicky’s parents have continued to live their lives and to fill Nicky’s life with hope, happiness and positive spirits. They will tell you that even though Nicky cannot walk or talk, he is still a very special boy who is here to fulfill God’s purpose for him. There are no accidents and the gifts which Nicky can offer the world are unique and important.

Here are some of my favorite photos of Nicky and his family.

Doesn’t he look handsome in his sunglasses?

Nicky’s dad made his room which is incredible and filled with a race car theme…complete with a race car bed. Check out that checker board pattern on the wall!

Sitting on top of the fish tank in the living room was this frame, with the spanish words for “I love you very much.” I think this really captures the feeling in their home and lives. Thank you so much Nicky, Sandra and Carlos for welcoming us into your home. I hope you enjoy your photos.

Here are is a slideshow of a few more photos from Nicky’s session.

Please visit Nicky’s webpage to read more about this inspirational family and how you can help researchers to someday find a cure for MLD.